Update from my panky surgeon

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heleng
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Joined: Wed Oct 23, 2019 10:13 pm

Update from my panky surgeon

Post by heleng » Sun Jul 26, 2020 11:26 pm

After 14 years of banging my head against many gastro and doctors walls , i found a panky specialist and pushed to get an appointment. For the first time i talked to someone that understood who i was and my disease. Within the next few weeks I had scans after scans and appointments with pain clinics etc and also applied for PIP benefit again! Then COVID hit and lockdown.

Well, i was awarded PIP and even my GP called me by my first name when we did a review of panky clinic. This week i was told my pancreas is severely scarred but no cysts/tumours so for the moment ok, after 14 years this is the first time that my illness has been confirmed and believe you me i was very grateful.

However, the twist in the tail, is the scans showed complex growths in my ovaries and another journey begins. If it wasnt for this group and support and advice pages i wouldnt have found any answers .

So thanks everyone , H

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maz
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Location: Harrogate, UK.

Post by maz » Mon Jul 27, 2020 9:28 am

It must be such a relief Helen. Not about the ovary issue of course, though really good to find out about that for sure so you can get on with whatever is necessary in that department. I hope all goes well. Thank you for your update.
Marilyn

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Janey Dal
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Joined: Mon Jul 26, 2010 10:34 am
Location: Stockton on Tees, NE UK.

Re: Update from my panky surgeon

Post by Janey Dal » Sat Aug 01, 2020 1:13 pm

Well good news and bad :?

At least you have a diagnosis and that bodes well for on-going treatment. The growths on your ovaries is a bummer but at least they found them before they got worse.

Keep us posted on how you get on with both treatments.

Hugs

Jane xx

heleng
Posts: 32
Joined: Wed Oct 23, 2019 10:13 pm

Re: Update from my panky surgeon

Post by heleng » Mon Aug 31, 2020 11:34 am

Thank you, had 2 weeks of scans and ultrasounds and i must admit that i had enough after all three, so just waiting for results. Getting on the table for the MRI and they said we inject you with a bowel relaxant. WHAT , omg after 3 days of constipation that was not what i wanted to hear with an hour to go strapped to the table and an hour car ride home. i made it, JUST. OMG they like to make life exciting dont they. I am sure i did 100 metres in 8 seconds

paul...m
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Re: Update from my panky surgeon

Post by paul...m » Tue Sep 01, 2020 6:27 am

Bet that kept your mind focused lol

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maz
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Location: Harrogate, UK.

Re: Update from my panky surgeon

Post by maz » Tue Sep 01, 2020 3:21 pm

Oh my goodness Helen, I couldn't have coped, not even with an MRI on its own, but with a bowel relaxant??? :shock: Glad you made it home. I have had 2 barium enemas in my life. Fortunately(or not depending on how you look at it) you do bowel prep prior so not a lot in there apart from the barium liquid. But oh my, they have a toilet just off the X-Ray room for you to go and get rid, how totally embarrassing that is to rush there and......
Marilyn

paul...m
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Joined: Thu Jan 30, 2020 6:53 am

Re: Update from my panky surgeon

Post by paul...m » Fri Sep 04, 2020 6:53 pm

Many years ago man in oppersite bed was having some special xray and put on a strong laxative . This was in days of mixed wards and toilet was down ladies end of ward every now and then he would run off as if in Olypics . But one time mens cubicle was engaged so had to go into ladies then appolagise to nurse that he had made a bit of a mess in there . Happy days .

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maz
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Location: Harrogate, UK.

Re: Update from my panky surgeon

Post by maz » Sat Sep 05, 2020 9:21 am

Never enough toilets on hospital wards, even modern ones. I don't know who designs them. Worse of course are bedpans or commodes. Worse again are needing bedpans or commodes during visiting, which these days(well non Covid normal visiting times) with such long visiting times :lol: :oops: .
Marilyn

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Janey Dal
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Location: Stockton on Tees, NE UK.

Re: Update from my panky surgeon

Post by Janey Dal » Sat Sep 05, 2020 12:12 pm

I remember visiting Alan in hospital one time and the guy in the bed next to him needed a commode.

I had to leave the ward the stench was so horrendous :shock: . Poor Alan was left in there :lol: :lol: .

Glad to hear things are moving Helen (sorry unintentional pun there :oops: :lol: ). It's the waiting that's the worst bit.

Hugs

Jane xx

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