Today, My Pain Mgmt is Like...

Chat about anything you like... Fed up with the state of the world today? Tell us!
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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Sat Jul 16, 2016 8:20 pm

Jane,

I thought I had better put up a nice picture! The rest of you English Beauties definitely make me work for it. Julie is sans pancreas and sans bones.

Mike,

For shame taking a shot at Stu's ruggedly handsome mug! No knife wielding doctors this trip. Pain management, psychiatrist, gastroenterologist, and hopefully endocrinologist. Neurologist if I am lucky. It will be an interesting week. I may be restarting several meds and possibly trying the Fentanyl. The Fentanyl will depend on my pain levels.

Stu,

Don't listen to Mike, he is just jealous!!

Paul,

Last night didn't go as normal because I ended up sleeping out the pain. My husband and I try to keep to our traditions. We are both homebodies. He prefers to be home than out with the men. Unless he can go hunting, if he can go hunting, I basically pack his bag and tell him to come back without any holes. Most of the time he comes home with delicious deer meat.

Today my pain is wiley. Sharp pains but so come and go that you don't want to "waste" any pain meds on what may just fizzle out and become nothing. Repeat. What to do...

~ Sassy
~Sassy

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Janey Dal
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Re: Today, My Pain Mgmt is Like...

Post by Janey Dal » Sun Jul 17, 2016 10:31 am

Hi Sassy

I take it you've tried the heatpad/hot water bottle therapy?

I'm not sure how it works in the US, but if you get the right GP here they will give you top up meds for breakthrough pain.

The other thing of course is not to let the pain get too bad before taking meds because it takes longer for them to work.

You probably know all this sweetie, but just in case.

Hugs and hope you start to feel better soon.

Jane xxx

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MikeyB
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Re: Today, My Pain Mgmt is Like...

Post by MikeyB » Sun Jul 17, 2016 10:54 am

Ive got an idea, Sassy, come and visit in October. The Red Deer come down off the hills, and one optimist stands in the field out back roaring his head off touting for marital business. All night.

So if Charles comes over over he could take a pot shot at the aforementioned deer without even leaving the garden, and I could get a night's sleep. I know it's not exactly top drawer hunting, but you can't have everything.

Mike x

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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Mon Jul 18, 2016 12:11 am

Jane,

Thank you for your counsel. I am definitely to have words with pain management. I have learned so much more about positive pain management from the forum. Most especially from Ray's posts. I know he would like that his words are still touching those who need guidance! I hope he is thrilled hosting the After Party. I hear we all get invitations when it is our time. There will be cheese, drinks, and 50 course meals!

Mike,

Charles would like to know how he would acquire a rifle and hunting permit. Then if you send Charles a ticket, he would be thrilled to help with your insomnia. I am not allowed to travel to a location where my Pancreatitis Boyfriend may abscond with my amazing person. I am not sure who would be crazy enough to want me when I am quite happy with Charles.

-I am safely ensconced at my parent's house. I am trying to choose a dinner meal, and pretend to ignore all of the sugary fatty foods available in a bigger city.

~ Sassy
Last edited by Shining_Peace on Mon Jul 25, 2016 5:31 am, edited 1 time in total.
~Sassy

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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Mon Jul 25, 2016 5:31 am

Today my pain management is ridiculous. My new sleep medication worked very well last night.

Today I woke up in pain, and suffered all day long. Luckily it was not the worst pain I have experienced, but I spent a good amount of time sitting on the couch with pillows braced against the painful areas. My pain, which originally was located only on my right side under my right breast, has now branched off to the left side of my upper abdomen. Now they throw a party and both throb and twerk together. I like to sleep on my side, but this new development makes this difficult.

Patience is a virtue, and I hope my patience is going to pay off with a more effective breakthrough pain med.
~Sassy

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MikeyB
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Re: Today, My Pain Mgmt is Like...

Post by MikeyB » Mon Jul 25, 2016 10:17 am

Sorry to hear about your bad day, but congratulations on getting a night's sleep. One win.

Did the pain wake you up, or did you wake up and the pain was there? What is the stuff you take to help you sleep? What did you take when you woke up with the pain? I've lost track of where you are in your pharmaceutical journey.

And in all this, don't forget good old paracetamol. It is an effective, and often forgotten pain reliever that can be added to an opiate based regime, but be careful, some of the more popular prescription pain relievers already contain it. If you're not on any of those, then add it in.

What's next with your pain consultant?

Mike

PS I think it's the start of the traditional Paisley holidays today, everyone in the West of Scotland is retreating into their nuclear bunkers, so this could be the last message for a while...

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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Mon Jul 25, 2016 3:29 pm

MikeyB wrote:Sorry to hear about your bad day, but congratulations on getting a night's sleep. One win.

Did the pain wake you up, or did you wake up and the pain was there? What is the stuff you take to help you sleep? What did you take when you woke up with the pain? I've lost track of where you are in your pharmaceutical journey.

And in all this, don't forget good old paracetamol. It is an effective, and often forgotten pain reliever that can be added to an opiate based regime, but be careful, some of the more popular prescription pain relievers already contain it. If you're not on any of those, then add it in.

What's next with your pain consultant?

Mike

PS I think it's the start of the traditional Paisley holidays today, everyone in the West of Scotland is retreating into their nuclear bunkers, so this could be the last message for a while...
Thank you Mike!

It was a sleep win last night too. This new medication for sleep is Rozerem 8mg. I woke up and I was in pain between a level 3-5. I took a dose of Dilaudid 8mg which did it's job until after lunch a few hours later. I think the problem with the pain that morning could have been a stent issue with my dinner meal the evening before causing all sorts of issues. When I woke up for the day, I also took Vyvanse. This is doing a great job keeping my eyes open and helping me not feel the need to sleep 18 hours a day. Today, hopefully my pain management doctor will be having a peer to peer discussion on the Fentanyl we have discussed previously. It would really be nice to treat my breakthrough pain effectively.

I have bottles of Tylenol everywhere important, my travel bags, my kitchen, and my parents' house. It definitely helps. I keep Benadryl (diphenhydramine) in the same places.

This morning, I did not wake up with anything more than pain level 2. It had been 9 hours since my last dose of Dilaudid, but my normal prescription time period is every 6 hours. I see this as a win!

I hope the rest of my day goes this well! If I don't update today, it was a good day.

Just an FYI for anyone/everyone reading...this is an inclusive topic. I would be more than happy to see other folks having a particularly good or bad day to feel free to join in and discuss your pain and pain management.
~Sassy

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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Wed Jul 27, 2016 4:48 pm

Today, so far, my pain management is like a blanket. Once pain is identified it goes under the blanket of my pain management and I magically don't feel the pain and there is no residual pain left over. I love when my pain can be managed like this...but, unfortunately my pancreas packs a Swiss army knife and sometimes cuts a hole in my blanket and then all of my pain pools out. Stupid, mean pancreas.
~Sassy

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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Thu Jul 28, 2016 11:37 pm

Today my pain management is like a big joke where everyone knows the punchline but me. I am hurting pretty bad right now. It's my own fault. I was an hour late taking my long lasting med, and before taking it, I tried to see how well good ol' Tylenol could control my pain.

Well I have now proven it can't control the pain at all. I am trying very hard to not go lay down. My husband has come home to a sleeping wife 3 out of the 4 days this week. I want to be sitting up when he gets home, but I don't want to be sitting up in preparation for a visit to the hospital.

I know some folks think that you can't be in too much pain if you are able to use electronics. Books used to be my escape from the horrors of real life like being bullied, being in pain, being scared, and/or being sick. I focus on the words and try to block out everything else. Sometimes it works, but sometimes I still end up trying to cool my fiery face on the tile floor after vomiting.
~Sassy

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MikeyB
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Re: Today, My Pain Mgmt is Like...

Post by MikeyB » Fri Jul 29, 2016 7:16 am

Sorry to hear you are having a bad day. It shows how important it is to get the long acting medication down you so that the short acting stuff doesn't have as much work to do. You don't need me to tell you that, though. It's a hard lesson. Have you discussed the possibility of using fentanyl patches with your pain consultant?

Hope you feel better soon.

Mike x

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Shining_Peace
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Re: Today, My Pain Mgmt is Like...

Post by Shining_Peace » Fri Feb 24, 2017 6:10 pm

My pain management has been horrible lately.

Maybe another duct is crashing, I don't know. I just know that I have been taking whammy for weeks and the pain still comes every day.

I am losing faith in this stent!
~Sassy

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Anne Dawson
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Re: Today, My Pain Mgmt is Like...

Post by Anne Dawson » Fri Feb 24, 2017 6:28 pm

Sorry to hear that, Sassy.
It's so frustrating when treatments don't seem to be helping.
Have you got an appointment soon?
Best wishes,
Anne.

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maz
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Re: Today, My Pain Mgmt is Like...

Post by maz » Fri Feb 24, 2017 7:10 pm

Can you get in touch with your specialist Sassy? Sounds like you need some help at the moment.
Marilyn

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stuart13
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Re: Today, My Pain Mgmt is Like...

Post by stuart13 » Fri Feb 24, 2017 7:50 pm

It's really unfair that you are suffering so much Sassy.

:)

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paul.m
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Re: Today, My Pain Mgmt is Like...

Post by paul.m » Sat Feb 25, 2017 2:36 pm

Hope things take a turn for the better soon you deserve it .
Paul

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